Brenn

Brenn
Ladysmith beach day

Sunday, June 6, 2010

It is really nice to hear from so many people that they are following the blog. Sometimes, it feels kind of stale for me to keep repeating myself about what is going on in our life. It seems kind of boring to me, because we are living it everyday. It is really nice for me to write every day though. It is a good download, there is difficulties every day with life as it is right now, but I really do believe that we are adapting to this new life style, and we will get through it stronger, and much more capable of dealing with stress and adversity.

That being said, today was a really up and down day. Brenn was really really tired again today, it was her worst day yet. She is just so tired of being sick, and being grumpy, and hungry all the time. She has such a huge belly, and such puffy cheeks right now. Her body has changed 100% since she started this treatment which is really hard to believe started less than a month ago. Tuesday will conclude the first phase of her treatment, and we are all really looking forward to the change. We really don't know what to expect over the next couple months, but we know that she will no longer be on her dexamethasone (the steroid that makes her eat so much, be very grumpy, and retain water). There in only one medication that we know for sure she will be on for the entire treatment. It is an antibiotic that protects her from getting a specific lung infection. All in all, this first month has been really hard on her with all the changes in her body, and the uncertainty of what is happening to her. She is really happy that she gets so much support from everyone, and loves hearing all the comments that you all post on the blog every day. I think it helps her to know that life will get back to normal again someday, and that this is only temporary. We tell her that she is going back to school again next year, and that when she is done the first 4 phases of her treatment, we will be able to go back home, but being in it everyday, it is hard for her to believe that that will actually happen.

We started the morning off by my Mom and Uncle Allan showing up at the house just before 7 this morning in preparation for the Child Run 5 K. This run is in support of the oncology ward at Childrens Hospital. I pushed Samantha in the stroller, which was really tough because there was 6000 people that ran this morning. It was great! My Uncle and I were able to run together throughout the entire run, and crossed the finish line together. There were so many small kids in the race, all running 5 km, we were very impressed. the course was quite hilly, and there were kids that were Brenns size running the whole thing. It was quite different from the races that my uncle and I usually do and it was a blast. We are already looking forward to running it again next year. However, my uncle says that next year he will be riding in the stroller, while Samantha runs. We are going to have to see about that one.

We walked down, and home after. On the way home, we saw a squirrel fall 80-100 feet out of a tree on the way home. It landed with a thud, jumped back up, ran to the same tree that it fell out of, climbed back up 5 feet and stopped, looked around, like wow did anyone see that! It was really funny. Once we stopped laughing, and got back to the house, we had lunch, and a bit of a rest, then we went out for a few things, before coming home for bed time. All in all, it was a pretty good day.

Scott

1 comment:

  1. Dear Brenn,

    I miss you in our class and everyone else misses you too! I pray for you and your family EVERY night before I go to sleep and pray you are feeling better very soon. I will write you again soon!

    Love,
    Jakob O.

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