Brenn

Brenn
Ladysmith beach day

Saturday, October 30, 2010

The last week has been the most unnerving and scariest week that we have had since the first month that we were here. Brenn is doing very great mentally and emotionally but physically the chemo is doing exactly what it is suppose to.....bringing her counts down fast! Wholly Hannah scary stuff! Brenns nose started running on Tues. so we brought her in o get it checked out, our nurse decided to blood then as Brenn was do for it the next day anyways. Her platelets were a whopping 24, she normally sits at 300!!!!! Now for those of you who are not familiar with what the platelets do they are the bodies bandaids, without them you just continue to bleed if cut, bruise by the smallest touch, when they are really low a nose bleed will begin and it will not stop. Brenn had no symptoms of having low platelets so this came as a surprise to Scott, myself and the doctors, we all decided to hang tight on the transfusion and keep an eye on her. By Thursday Brenn developed petecheia (broken capillaries) along the sides of her neck . I immediately call clinic to discuss a plan of action as this is a sign of her platelets being at a critical low. Brenn was still fine as she was not bleeding as of yet. We brought Brenn in Friday morning, her platelets were 10. Writing this I am feeling the anxiety I have felt the last few days, the constant worry of the what if's. Hitting her head could cause massive bleeding, cutting herself more blood, bumps resulted it bright red, purple, black and blue marks as they aged. Living in fear of ones 5 year old playing normal 5 year old games is not a fun place to be. Scott moved Brenn's bed as she could hit her head in her sleep, start bleeding and we wouldn't know. The last week as be spent saying "Brenn don't run, Brenn be careful, please be careful with Brenn her platelets are low" over and over again. So we got platelets yesterday and on Monday we go back to clinic and her counts will be checked again as Brenn's hemoglobin was 1 point away from when they normally transfuse. Our little person is black, blue and red poke a dotted, and a nice shade of really white! We are glad the week is over, and we are thankful that the chemo is doing what it is suppose to do, KILL the rest of the cancer living in Brenn's body, but in doing this it also kills the healthy cells and so we are living through this coming out the other side and looking forward to returning home to live a reasonably normal new life.

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