Brenn

Brenn
Ladysmith beach day

Friday, July 2, 2010

Well, it was a pretty good day again today. We had a few more melt downs today than normal, and we are not completely sure why that is, but I put the girls to bed a little earlier tonight, in hopes that they will both feel better tomorrow. Brenns appetite is starting to drop off again. She is starting to tell us that everything tastes like nothing. Things have been going so well over the last couple days, that it is hard to believe that there is something even effecting her, but there are always things that will bring us back to knowing what is going on and why we are here. Today was a bit of a reset day for me. I think that it was good to have a reset now, we were starting to get comfortable, and we really need to keep the fact that Brenn needs lots of protection at the fore front of our minds!

I made pancakes, and sausages with strawberry syrup for breakfast this morning. The kids really liked the sausage, the rest they pretty well left on their plates, but Christine and I enjoyed it. Breakfast was when I started to see that Brenns tastes are really changing again. We knew that this would happen, and have kind of prepared for the fact that she would not really be interested in food all the time again. She had a few times in the day when she really wanted food, but once she got the food, she didn't really want it. She picked at lunch and at dinner, and only had a small snack in between. We really have been pushing the water into her. We are really afraid of dehydration right now. Ryan went into the hospital this past week with dehydration, and we really don't want that for Brenn. The medicine that they are both on really makes their kidneys work hard, and they have to flush all of the dead blood cells through them, and thus they need a ton of water, or juice. The doctors say that they should drink anything clear, and the nutritionist says that she should drink water (I think I will side with the doctor, since the only way I can really control caloric intake right now is through juice).

Any way, another pretty good day! We made it to the beach today for a little while. It was a really beautiful day in Vancouver, and since most people took the day off, the beach was really busy. We found a nice place to sit, and play in the sand though, making sure that Brenn kept her hat on. We finally took the trimmers to Brenns hair yesterday, and she is looking really fantastic! She looks absolutely beautiful without hair! She is always a really great looking kid (I may be biased, but I am allowed), and we were all worried that she would be uncomfortable, and shy without hair, but I tell you, this kid doesn't care at all. She likes herself, and doesn't care how many people look at her! When we are out around town, everyone looks at her, some stare at her, and this does make us a little upset. I think that I am okay with it now (not great with it), but it still bothers Christine. She is such a great mother, she really doesn't want anyone to look at Brenn like that. She is very protective of Brenns feelings now, and quite frankly it is beautiful to see. The love that they have for one another knows no bounds.

We have really been blessed with two wonderful children, and this time that we have to spend together. This has been a really difficult road so far, and we still have a long long way to go, but the time that we get to spend together, is really precious. We are all getting so close, we do everything together. I really feel blessed with this time. I am having a hard time understanding that feeling, because Brenn is sick, but with all of the prayers that we have received, and all the support, we have really become inseparable. I thank God that he has given us this precious time, I just can't figure out exactly how to feel about it, it is really hard to understand!

Scott

1 comment:

  1. Scott, don't feel badly about enjoying your family time together. If God is working something beautiful out of Brenn's illness, then let him! Only God can make something good out of something bad. Let's praise him for it! You are an awesome family.
    Beth

    ReplyDelete